Tuesday, September 22, 2009


My sweet Little Little was laying on my bed in the midst of folded towels, folded jeans and pants, a couple of baskets of unfolded clothes and amongst all these folded and unfolded commodities were about 50 shirts stacked on top of each one with a hanger readily placed inside the shirt, waiting to be hung up.

As he was smiling and kicking and enjoying Smith Land, I looked at my Little Little and I told him how much I loved him.... I was thinking of a couple different things as I finished folding all the laundry......

The head nurse at his pediatrics office.

Just picture a bitter spinster/school marm, that is out to get YOU out of everyone in class.

That is the way I feel around this particular head nurse. When I first brought smith into the doctors office to get his circumcision (he was only 5 days old) she came in his room with her skin flexing in between her eyes exposing many wrinkles and asked sourly," Why did you name your son smith? Why?" I was thinking, it's really none of your business and you live in Utah don't you? I mean, kids come in with the name Wasatch or Avenue and you probably don't blink, but a boy comes in with the name Smith and you act as if it is the worst tragedy known to man.

Well, I called this special Nurse the other day to see if she could get me on priority for the geneticist at Primary Children's (normally it is a year wait with out a Doctor referral), and guess what she said?
"That is a normal amount of wait for a child, you will just have to call in and make an appointment." I bit my tongue and called into Primary Children's, and they said it would take about a year, then I asked, "with a Doctor referral can my son get in earlier?" They said "yes". Hmmmm...... I got a little perturbed and called the head nurse, this is close to what I said," Hi, this is Beth Taylor, mother of Smith Taylor. I called earlier about making an appointment with the Geneticist, and they told me if Smith's Doctor called in I could get in earlier. So I was calling to see if you could do that for me."
"We have already spoken, that is just normal to be put on a waiting list."
"Yes, but I don't think you understand, Whenever I come into your office I have to fill out a questionnaire regarding my son's development. Every single, EVERY SINGLE question it asks me, of pages of things your kids are supposed to be doing I mark, "Not Yet" . According to your standards he is still a new born and he is 16 months old. The neurologist has diagnosed him as a medical mystery, he has had cat scans, an MRI and developmental specialists in and out of my home for a year. I think you could call and put him on some priority, don't you think?"
"I can talk to Doctor Glade and see what I can do."
I now have an appointment in November for a neurologist, a G.I. specialist in October, and I am waiting on the Geneticist, but they told me I could get in soon, sooner than a year. My fingers are crossed.
I don't usually force my self onto people like that, but I did it for the love of my son. I felt good afterwards and I know Smith deserves a Mom that will put up a fight for him. I realized then more than ever, Moms are warriors and they have to battle everyday with decisions for their little ones. My "character" will have to change in order for Smith to get better. I can't be the easygoing and carefree person I am with life, but with Smith I have to be a warrior. A warrior that will battle and fight and try to figure out what he needs everyday.

"The formative period for building character for eternity is in the nursery. The mother is queen of that realm and sways a scepter more potent than that of kings or priests. "~Author Unknown

I am so grateful and honored to be the mother of Smith.
This story ends with me leaving the piles of laundry to get a glass of water in the kitchen and to my return all the shirts were found on the ground! I looked at Smith's smiling face and realized he had kicked them off. I shouted, "Yeah!!! You did something bad Smith! Your first "no no"! I loved it. I told him I want to see more "no no's" and I smiled and picked him up and forgot about the laundry while I played with my son.


  1. You are a good mom. And you're right, you will also need to be a good advocate. (Sounds like you're doing just fine on that score, too!)


  2. you should have reached through the phone and punched that nurse in the face. :)

  3. Way to go Beth!!!!! I am so proud of you for being "mean" (which I bet even when you used your assertive tone, it probably came out with a beautiful smile and twinkling eyes) You are the best mom for Smith! I love that he kicked the clothes off of the bed. That's my nephew! Love ya!

  4. I totally agree that becoming a mother really makes you 'step up' and put your foot down when it comes to your baby. I'm so glad you were able to work those things out--hopefully things will continue to work out sooner than later for Smith and his future appointments. Good luck with the months to come.

  5. i savor this post. you are amazing:-) so excited for you and standing up to spinster nurse!!!

  6. You're awesome Beth way to stand up to that meanie nurse! You are too good. I love you!

  7. I hate mean nurses! I hope no one ever thinks I am a mean nurse. I love this story Beth. Mothers are warriors and Smith is so lucky to have a Mom like you. I hope everything goes well with all of your appointments and I hope that you can find out more about what is going on with Smith. I love reading your blog. You are an amazing writer.

  8. I'm proud of you, Beth. You're a great momma!

  9. You and Bryce are amazing. I'm proud to be your friends. I love you guys.

  10. My Bethy Jane,
    I am so proud of you. You are an amazing mom, and what a blessing you and Smith are to each other!

  11. Beth, you are a beautiful, bright, and caring individual, whom I learn so much from. Your goodness is such an inspiration, and your humor, even through life's tough challenges, is a quality you should cling to. If we can't laugh through things, they will conquer us. You are doing what is best for your son, and no one, not even a mean, crusty wrinkly faced old lady can deny that. You have to stand up for what is right. You have to do what is best for your family. And, if that means getting down to business instead of biting your tongue, then do it! And don't ever feel bad about it. I love you!

  12. Also, I heard the end all utah names... Cabela (a girl-dad must be a fan of the store)... Annakin (as in darth vader) and get this one... PIXEL! haha. I couldn't believe it.

  13. Em sent me over here. She told me you are inspiring. And you are. My heart goes out to you as you embark on this journey. Parenting a child with special needs can often feel lonely, as most of your friends and loved ones just don't get it. Hang in there. I have a feeling little Smith will reach his milestones in his own time (that's the hard part, right?).

    By the way, I love the name Smith. I went to high school with a Smith.


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